This webinar, featuring David Lynch, MD, PhD, of Children’s Hospital of Philadelphia, will provide updates on the evolving Friedreich Ataxia (FRDA) treatment landscape and briefly discuss the status of FRDA understanding, diagnosis, and research.

Understand the genetic etiology of FRDA management

Identify disease manifestations and understand the role of multidisciplinary care in optimizing treatment 

Incorporate recent advances in clinical studies into patient care and provide guidance

New Directions in Friedreich Ataxia

MDA Care Center Discussion Group (PRIVATE)

Neuromuscular Disorders Medical Education

Learn more about neuromuscular disorders with these interactive e-learning modules by MDA

Anushka Mehrotra

In this module we will discuss the psychosocial impact and care considerations for people living with neuromuscular disease

Mental Health Considerations for Adult Patients with Neuromuscular Disease

Updates on diagnosis and management of Spinal Muscular Atrophy, from the Muscular Dystrophy Association

What's new in Spinal Muscular Atrophy (SMA)

This webinar provides an overview of the changes to the previous LGMD ICD-10 codes and raises awareness about the significance and potential impact of the implementation of the new LGMD ICD-10 Codes

ICD-10 Codes for Limb Girdle Muscular Dystrophies

This webinar, featuring Dr. Sheetal Shroff of Houston Methodist Neurological Institute, explores Myotonic Dystrophy and its current treatment landscape. Topics discussed will included diagnosis, treatment options and new and ongoing research updates.

Updates in Myotonic Dystrophy

This webinar, featuring Jordan Bontrager, MS, CGC, of the University of Rochester Medical Center, explores genetic testing. Topics discussed will include an overview of genetics in neuromuscular disease, special considerations for genetic testing and referral, and resources for sponsored programs.